So Far ...so far

The marathon has started ... or so I have now realised!

We have gradually arrived at a fuller understanding of what will be involved in the treatment of my 'problem'. Those of you who know me well will appreciate that I like to understand exactly what is going on. So it has been exasperating that, everyday, it seems that I've been told something different. Before I went in to hospital, I'd been told that I'd have to stay in hospital overnight for the first intravenous injection. Then I went for an assessment prior to my admission and was told that I'd have to stay in for 3 days. Once I was actually in the hospital, this then became 4 days. Then having seen a specialist haemotologist, who is actually in control of my treatment, I was told that I'd have to stay in hospital at least 5 days for every 2 injections.

The problem seems to be that there is a failure of communications between the haemotologist who is controlling my treatment, and the Nephrology department, who are administering my treatment!

At the moment, I will have to have 4 intravenous injections of 'chemo' in conjunction with a large dose of steroids, over 2 weeks. Then I should have 2 weeks at home. So each cycle takes a month, and I will be having 9 cycles .... which takes us through to about next June!!!! My fear is that, once I'm fully in to the treatment I'm going to find that I won't be up to working in the house, and the thought of a 'wasted' 9 months is somewhat depressing. Still, no going back!

More news to come when we get told something different.